Tailor-made data services for your needs
Orphanet-AISBL acts as a centralized hub for expert data services, providing organizations with the insights they need to make informed, impactful decisions. Delivering expert-curated data solutions to support evidence-based decisions.
Our offer is designed to provide stakeholders in the rare-disease ecosystem with the tools, knowledge, and analytical support needed to transform data into meaningful action. Each component of our service portfolio contributes to strengthening decision-making across scientific, clinical, regulatory, and policy environments. We provide solutions that ensure data are accessible, interpretable, harmonised, and ready to use for operational, strategic, or policy purposes.
Access to Curated Data Platforms
We provide access to structured and expert-curated platforms that centralise reliable rare-disease data, offering a consistent and validated foundation for research, planning, and strategic work.
Custom Data Visualisations
We translate complex information into clear, comprehensible visual formats, helping stakeholders interpret trends, patterns, and key indicators with accuracy.
Tailored Datasets
We produce targeted datasets adapted to specific scientific, clinical, or policy questions, enabling precise and context-relevant analysis.
Data Integration and Harmonisation
We combine diverse data sources into coherent, standardised outputs, ensuring consistency, comparability, and improved analytical quality.
Dashboards
We develop dashboards that consolidate critical data points into a single, accessible interface, supporting rapid assessment and informed decision-making.
Advanced Analytics
We apply analytical methods to extract deeper insights, identify relevant associations, and support evidence-based interpretation.
Research Support
We assist stakeholders throughout the research process by providing contextualised knowledge, methodological clarity, and analytical guidance.
Tailored Stakeholder Reports
We prepare structured, contextualised reports designed for specific audiences, supporting communication, strategic planning, and informed decision-making.
Policy Briefs
We synthesise key insights into concise, decision-oriented briefs suitable for policy development, regulatory discussions, or strategic planning.
Policy & Strategy Consulting
We provide consulting support to help institutions design, refine, and implement policies and strategies grounded in reliable evidence.
Expert Training and Capacity-Building
We deliver training programmes to strengthen stakeholder capacity to understand, interpret, and use expert-curated rare-disease data effectively.
Tailor-made data services for your needs
Our offer reflects a commitment to providing reliable, expert-curated information and practical tools that enable stakeholders to act with confidence.
By ensuring that data are usable and adapted to operational needs, we contribute to a more coherent, evidence-driven rare-disease ecosystem.