We have finalised our service catalogue and remain open to any additional proposal to help shape our offer on an ongoing basis.
- Contact us directly to explore use cases or co-design your own solution
- Join our consultation by completing the online survey (QR code provided)
- Partner with us to pilot new, data-driven services for your organisation
Together, let’s build the future of rare disease research,
innovation, and evidence-based decision-making.
Take the survey
Have your say in shaping the services we provide
The Orphanet-AISBL is committed to developing services that transform expert-curated rare disease data into actionable knowledge for patients, foundations, industry, biotech, researchers, healthcare professionals, consultants, CROs, and policymakers.
To ensure that our activities truly respond to your needs and expectations, we invite you to take part in this short survey. Your feedback will help us shape our priorities, refine our services, and strengthen our contribution to the rare disease community.